This year, our local Junior High Cross Country captains have chosen to run this race in honor of Owen and his journey with Sanfilippo Syndrome MPS IIIA. This was their annual Alumni Run. Our Jr. High runners get their first (practice) 2 mile race and they open it up to all of our alumni, friends, family, and the community. This year, they have chosen Owen as their angel to help and they invited the community to come out in support of Owen and our family and wanted to help by increasing awareness.

This was Owen’s first fundraising event and we are so grateful for the people in our life that took the time to come out for an hour or two and be a part of it with us. It was a smaller and more intimate one and we are so lucky to live in this close and giving community. More shirts and bracelets were sold to those who wanted to help spread awareness and we had so much fun with family and friends.

Watching him run to the finish line was the most beautiful thing.

He stood next to his teacher and watched as all the other kids ran as fast as they could through to finish and as always was everyone’s biggest cheerleader.

After everyone made it through, all the boys and girls on the team came together and made a bridge for O to run through. He loved it and giggled the whole way! Everyone else stood back by us as lined up so that Owen could finish with some high fives.

THANK YOU from the bottom of our hearts to our community, for honoring this year’s run to Owen. He glowed in that evening sunset and you could just tell that his heart was so happy to see some of his friends from school and surrounded by people he loves.

You can follow his Facebook page, if you don’t already, for future updates on Owen:

Owen’s Story : Sanfilippo Syndrome MPS IIIa